Resources
Explore these useful NMOSD resources
NMOSD, neuromyelitis optica spectrum disorder.
Books and guides to help navigate NMOSD
A book to help explain NMOSD in adults to children
As a parent, talking to your children about NMOSD can be hard. This book can help explain the condition in an accessible and empathetic way.
Order a Book to Help Explain NMOSD in Adults to ChildrenDoctor Discussion Guide
This helpful Doctor Discussion Guide gives you tips on how to talk to your doctor about NMOSD.
Doctor Discussion GuideBrowse these helpful websites for more information about NMOSD
National Organization for Rare Disorders
The National Organization for Rare Disorders website has a thorough section on NMOSD, including management options and other relevant organizations.
National Organization for Rare Disorders
The Siegel Rare Neuroimmune Association
The Siegel Rare Neuroimmune Association website has several pages devoted to NMOSD education, including topics like symptoms, diagnoses, acute treatments, and long-term management.
The Siegel Rare Neuroimmune Association
The Guthy-Jackson Charitable Foundation
The Guthy-Jackson Charitable Foundation is an organization committed to investing in NMOSD research and education. Its website contains information about NMOSD, ongoing research, and community engagement opportunities, including the launch of an NMO resources app.
The Guthy-Jackson Charitable Foundation
The Sumaira Foundation
The Sumaira Foundation is dedicated to generating global awareness of NMOSD, supporting research to find a cure, and creating a community of support for patients and their caregivers.
The Sumaira Foundation
Engage with Patient Education Managers (PEMs)
Learn more about NMOSD at ENGAGE events. Hosted by a PEM, ENGAGE events are a great place to learn, connect with other adult patients, and more.
Connect With a PEM
Navigate your NMOSD
Engage with the NMOSD community and explore educational events.
Attend an Event
