
A book to help explain NMOSD in adults to children
As a parent, talking to your children about NMOSD can be hard. This book can help explain the condition in an accessible and empathetic way.
As a parent, talking to your children about NMOSD can be hard. This book can help explain the condition in an accessible and empathetic way.
This interactive Doctor Discussion Guide gives you tips on how to talk to your doctor about NMOSD.
This brochure provides you with an overview of NMOSD—from symptoms, to how the disease impacts the body, and more.
This resource provides basic statistics and a general overview of NMOSD.
This brochure breaks down how to start a conversation about NMOSD with your loved ones, employer, and coworkers.
This guide gives advice on how to manage living with NMOSD, and encourages you to make a mental health plan.
PEMs can provide you with treatment education, personalized support, and resources, including information on local events.
Find a PEM near youChat 1:1 with an ambassador who is also living with NMOSD. Share your experiences about living with this rare condition.
Sign up for Peer ConnectsNational Organization for Rare Disorders
The National Organization for Rare Disorders website has a thorough section on NMOSD, including management options and other relevant organizations.
National Organization for Rare DisordersThe Siegel Rare Neuroimmune Association
The Siegel Rare Neuroimmune Association website has several pages devoted to NMOSD education, including topics like symptoms, diagnoses, acute treatments, and long-term management.
The Siegel Rare Neuroimmune AssociationThe Guthy-Jackson Charitable Foundation
The Guthy-Jackson Charitable Foundation is an organization committed to investing in NMOSD research and education. Its website contains information about NMOSD, ongoing research, and community engagement opportunities, including the launch of an NMO resources app.
The Guthy-Jackson Charitable FoundationThe Sumaira Foundation
The Sumaira Foundation is dedicated to generating global awareness of NMOSD, supporting research to find a cure, and creating a community of support for patients and their caregivers.
The Sumaira Foundation