A book to help explain NMOSD in adults to children
As a parent, talking to your children about NMOSD can be hard. This book can help explain the condition in an accessible and empathetic way.
Resources
Explore these useful NMOSD resources
Materials to help you navigate NMOSD
Doctor Discussion Guide
This interactive Doctor Discussion Guide gives you tips on how to talk to your doctor about NMOSD.
NMOSD Educational Brochure
This brochure provides you with an overview of NMOSD—from symptoms, to how the disease impacts the body, and more.
NMOSD Educational Brochure (en Español)
NMOSD Factsheet
This resource provides basic statistics and a general overview of NMOSD.
Guide to Discussing NMOSD
This brochure breaks down how to start a conversation about NMOSD with your loved ones, employer, and coworkers.
Mental Wellness Brochure
This guide gives advice on how to manage living with NMOSD, and encourages you to make a mental health plan.
Check out these resources to get live support
Speak with a Patient Education Manager (PEM)
PEMs can provide you with treatment education, personalized support, and resources, including information on local events.
Find a PEM near you
Peer Connects
Chat 1:1 with an ambassador who is also living with NMOSD. Share your experiences about living with this rare condition.
Sign up for Peer ConnectsBrowse these helpful websites for more information about NMOSD
National Organization for Rare Disorders
The National Organization for Rare Disorders website has a thorough section on NMOSD, including management options and other relevant organizations.
National Organization for Rare Disorders
The Siegel Rare Neuroimmune Association
The Siegel Rare Neuroimmune Association website has several pages devoted to NMOSD education, including topics like symptoms, diagnoses, acute treatments, and long-term management.
The Siegel Rare Neuroimmune Association
Patient Health Alliance
The mission of Patient Health Alliance (PHA) is to unite patients, caregivers, clinicians, researchers, and advocates across the NMOSD and rare disease community to advance education, engagement, and empowerment through innovative advocacy programs that address critical unmet needs and strengthen connection, support, and equitable access to resources.
Patient Health Alliance
The Sumaira Foundation
The National Organization for Rare The Sumaira Foundation is dedicated to generating global awareness of NMOSD, supporting research to find a cure, and creating a community of support for patients and their caregivers.
The Sumaira Foundation
Navigate your NMOSD
With a variety of events, you can hear from PEMs, caregivers, and doctors about the impact of NMOSD, treatment options, available support, and more.
Attend an Event
