Resources

Explore these useful NMOSD resources

Materials to help you navigate NMOSD

A book to help explain NMOSD in adults to children

As a parent, talking to your children about NMOSD can be hard. This book can help explain the condition in an accessible and empathetic way.

Order an NMOSD Book for Children

Doctor Discussion Guide

This interactive Doctor Discussion Guide gives you tips on how to talk to your doctor about NMOSD.

Doctor Discussion Guide

NMOSD Educational Brochure

This brochure provides you with an overview of NMOSD—from symptoms, to how the disease impacts the body, and more. 

NMOSD Educational Brochure

NMOSD Factsheet

This resource provides basic statistics and a general overview of NMOSD.

NMOSD Factsheet

Guide to Discussing NMOSD

This brochure breaks down how to start a conversation about NMOSD with your loved ones, employer, and coworkers.

Guide to Discussing NMOSD

Mental Wellness Brochure

This guide gives advice on how to manage living with NMOSD, and encourages you to make a mental health plan.

Mental Wellness Brochure

Check out these resources to get live support

Speak with a Patient Education Manager (PEM)

PEMs can provide you with treatment education, personalized support, and resources, including information on local events.

Find a PEM near you

Peer Connects

Chat 1:1 with an ambassador who is also living with NMOSD. Share your experiences about living with this rare condition.

Sign up for Peer Connects

Browse these helpful websites for more information about NMOSD

National Organization for Rare Disorders

The National Organization for Rare Disorders website has a thorough section on NMOSD, including management options and other relevant organizations.

National Organization for Rare Disorders

The Siegel Rare Neuroimmune Association

The Siegel Rare Neuroimmune Association website has several pages devoted to NMOSD education, including topics like symptoms, diagnoses, acute treatments, and long-term management.

The Siegel Rare Neuroimmune Association

The Guthy-Jackson Charitable Foundation

The Guthy-Jackson Charitable Foundation is an organization committed to investing in NMOSD research and education. Its website contains information about NMOSD, ongoing research, and community engagement opportunities, including the launch of an NMO resources app.

The Guthy-Jackson Charitable Foundation

The Sumaira Foundation

The Sumaira Foundation is dedicated to generating global awareness of NMOSD, supporting research to find a cure, and creating a community of support for patients and their caregivers.

The Sumaira Foundation