Videos & Podcasts

Browse videos and podcasts about NMOSD

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Stories From People Living With NMOSD

Watch Blindsided Within

Blindsided Within

In this PBS documentary, we see both people living with NMOSD and doctors sharing their experiences with this disease. People who have been diagnosed with NMOSD talk about how lives have been impacted, while doctors elaborate on the science behind the condition.

Watch Rare Connections in NMOSD Short Film

Rare Connections in NMOSD Short Film

This video shows strangers with NMOSD reading letters one another wrote about their experiences living with NMOSD.

Watch Rare Connections in NMOSD Short Film

Rare Connections in NMOSD Short Film (accessible version)

This video shows strangers with NMOSD reading letters one another wrote about their experiences living with NMOSD. The accessibility features in the video include on-screen text and visual descriptions being read aloud. 

Watch Arlin's Story: Misdiagnosed

Arlin's Story: Misdiagnosed

After being initially misdiagnosed with multiple sclerosis, Arlin experienced multiple attacks before being correctly diagnosed with NMOSD in 2008. Hear from Arlin, about her NMOSD journey and the importance of NMOSD awareness.

Watch Arlin's Story: How Life Changed

Arlin's Story: How Life Changed

Listen to Arlin talk about how NMOSD has affected her daily life and how she has adjusted to living with this condition.

PEM Videos

Watch Get to Know Your PEMs

Get to Know Your PEMs

Hear from PEMs about how they assist people living with NMOSD by providing support and resources: teaching people about NMOSD, treatments, and connecting people with advocacy organizations.

The Background of PEMs

The Background of PEMs

Learn about the PEMs’ expertise as nurses and caregivers, and why they decided to become PEMs.

Watch A Day in the life of a PEM

A Day in the Life of a PEM

What do PEMs do on a daily basis? From hosting events to one-on-one calls with people living with NMOSD and caregivers, PEMs share their daily tasks.

Watch The Significance of Working With a PEM

The Significance of Working With a PEM

Hear from PEMs as they detail how they help navigate and support people living with NMOSD, by answering questions and connecting them with support groups.

Watch PEM Support After Misdiagnosis

PEM Support After Misdiagnosis

PEMs help explain to the many people who are initially misdiagnosed before getting the correct diagnosis of NMOSD how and why misdiagnoses can happen.

Watch Self-Advocacy for Those Living With NMOSD

Self-Advocacy for Those Living With NMOSD

PEMs discuss how they educate people living with NMOSD on their condition and encourage them to advocate for themselves.

Watch The Importance of Support Systems

The Importance of Support Systems

In this video, we hear PEMs emphasize the significance of a support system for people living with NMOSD and how PEMs can help strengthen that system. 

Watch Getting Connected With PEMs

Getting Connected With PEMs

Find out from the PEMs how to get in touch. Whether in-person or virtually, there are many ways to feel a PEM's support. 

Podcasts About NMOSD

Managing Uncertainty
Host Debbie Leticq talks with psychologist Dr Sally Shaw about how to manage the uncertainty of living with a condition like NMOSD and how to deal with the unpredictability of relapses and of not knowing what their long-term impact may be.
In Sickness & in Health
Andrea, a patient advocate and James, her husband and caregiver, speak candidly about the challenges of adjusting to life after Andrea’s diagnosis and subsequent vision loss. They share how they've worked together to restore Andrea’s independence.
The Patient Perspective
NMOSD impacts every patient differently; in this podcast, patients Lynda and Erica discuss their very personal journeys to diagnosis, including their early symptoms and their first NMOSD attacks.
Navigating Relationships
Psychologist Dr Sally Shaw tackles the challenges of being diagnosed with a complex condition such as NMOSD and discusses how we can learn to navigate difficult conversations with loved ones, family or friends.
How to Prepare for Your Neurologist Visit
Dr Galina Vorobeychik, director of the Fraser Health Multiple Sclerosis Clinic at Burnaby Hospital and assistant professor of neurology at the University of British Columbia, joins host Lelainia Lloyd to discuss the importance of a team-based approach to treating NMOSD.
Unpacking NMOSD
Host Debbie Leticq speaks to neurologist Dr Lesley-Ann Hall about her own journey to an NMOSD diagnosis and the importance of supporting people by giving them the knowledge they need to manage their NMOSD.
NMOSD & MS: What's the Difference
Dr Daniel Selchen, a neurologist and senior consultant at the MS clinic at St. Michael’s Hospital in Toronto, Canada, explains the importance of receiving a correct diagnosis, and discusses the importance of care for NMOSD patients.

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MS, multiple sclerosis; NMOSD, neuromyelitis optica spectrum disorder.